[Virtual Registration] MSF Family and Scientific Engagement Conference

About the Conference

The MSF Family and Scientific Engagement Conference will be held on July 23–26, 2026 in Philadelphia, PA. The conference will take place at the Children’s Hospital of Philadelphia located at 3401 Civic Center Blvd., Philadelphia, PA 19104. Hotel accommodations, family registration, and the welcome dinner will be hosted at the Sheraton University City Hotel located at 3549 Chestnut St., Philadelphia, PA 19104.

This year’s conference is especially exciting as we expand to a hybrid format for the first time, allowing families and professionals to participate both in person and virtually. We are thrilled to offer virtual registration making it possible for more members of the community to join us, learn from experts, and connect with other families regardless of location.

This year’s conference will be held in partnership with the Children’s Hospital of Philadelphia (CHOP), one of the nation’s leading pediatric medical centers. Attendees will have the opportunity to learn from Malan syndrome experts, hear the latest in research and clinical care, and build lifelong connections with other families.

Please note: The link provided is for virtual ticket purchases only. If you are looking for more information regarding in-person registration, please email info@malansyndrome.org

You will receive a Zoom link to log in and access the conference the day before the event.

Helpful Information

Click here to view our 2026 Sponsorship Packet

Thank You, Donor Families

Peet-James Family

Burgwald Family

Bell Family

Ravalin Family

Farmus Family

Kacarevic Family